Sickness

We had a week of nothing but colds around our house. Jordan woke up wheezing really bad on Tuesday morning so we gave her a couple of Rylee's xopenex breathing treatments and it didn't seem to help her. By the time I got home she sounded horrible and was really working to breathe. We got to the doctor's office and the PA was very concerned at first and mentioned hospitalizing her but once she was able to hear some good breath sounds in her lower lobes she felt comfortable sending her home. They had us do another xopenex treatment at the offce and then prescribed her zithromax to try to keep her from getting pneumonia. By Wednesday she was still really bad so I scheduled another appointment at the doctor. By the time I got home she was sounding much better and I questioned whether I should take her in or not. I decided to be safe than sorry. We waited in the sick side of the waiting room and after 40 minutes I decided it wasn't worth the wait and cancelled our appointment. I couldn't take sitting there with sick kids and trying to control a 23 month old at the same time. Since then she has done better each day. Rylee has had a little more of a runny nose these last couple days but no fevers so that is good. I woke up on Saturday morning with the same symptoms and not enjoying being sick. I figured the girls are safe with me around as they are probably the ones that got me sick to begin with. We are thinking the girls 3 Thanksgiving gatherings probably didn't help keep them healthy. It is still really scary seeing them get sick and have to work so hard to breathe. I was able to put our Christmas tree up on Friday and so far no broken ornaments. I didn't put all the ornaments so hopefully we will still have some left after this holiday season. The girls can say HO HO HO when you ask them what Santa says. I can't wait to see their faces on Christmas morning. We have a closet full of gifts that I know they will love. I have a prayer request for everyone. Our receptionist at my office went into premature labor this past week and delivered a 27 1/2 week old baby girl last night. It brought back a lot of memories with my delivery. She started out at Shawnee Mission Medical center like I did and then ended up at St.Lukes on the plaza where I delivered the girls. She was able to get some steroids so that will help the baby tremendously. It is still really hard hearing about other mommy's having to go through the same thing we had to endure with our girls. After hearing about other preemies it really reminds me how blessed we really are to have our girls with us.

Happy Thanksgiving

I hope everyone had a safe and wonderful Thanksgiving holiday. Troy and I were off on Wednesday so we took advantage of our nanny and went out on a date. Most of the date consisted of shopping for our little girls but it was still a great time. We took the girls to my aunt's house in Americus, Ks on Thursday and I am not sure if we will be invited back for Christmas dinner! Just kidding Aunt Kathy I know you will let us back into your home with double trouble. I had some friends come visit for the weekend so Troy took the girls on a 2 1/2 hour road trip to his family Thanksgiving. I think all went well until he got a $145.00 speeding ticket on the way home. I think he was in a hurry to get the girls home to their mommy. It did feel very weird not having them with me all day. Rylee woke up with a fever this morning and her lungs have a lot of secretions in them. She still doesn't do a very good job a coughing up the phlegm so we are working on that. I gave her some tylenol and motrin a couple times today and her fever hasn't been back. I also gave her some mucinex type stuff that she had with her trach to loosen up the secretions and that seems to help. My mom is watching both girls tomorrow as our nanny is off so lets pray Rylee stays well. I have a feeling that it might be here aspirating some of her foods or liquids. I have been giving her a few drinks here and there and not sure if she can handle it quite yet.

23 Months

Our little girls turned 23 months yesterday and have been with us for 701 days. What a journey it has been. I took Rylee to CMH on Monday for her OT and nutrition appointment and everything went well. Rylee ate some snacks while we were there and even took a few drinks. We were given the okay to keep her home over the flu and cold season as she will be going to her pediatrician every 28 to 30 days. I will just keep the nutritionist updated with her weight gain. The nutritionist was amazed at how much Rylee has grown in the past six weeks and is gaining weight like she should. We are now only giving her 4 ounces of her pediasure and all her daily water through her tube and hoping she will start drinking more of her liquids. We can still give her more pediasure if we feel she didn't eat well during the day. It is really nice knowing she is doing most of her eating all on her own. I almost had a panic attack while we were in our appointment as they called a Code Blue alarm over the intercom. This brought back some bad memories that I would love to forget. I was so worried about the child as it was right next door to where we were. Troy came home Thursday afternoon with a sore throat and wasn't feeling well so he was confined to the bedroom and only let out with a mask. The girls thought it was quite weird and didn't know what to think. I need to get some adult mask in our house as all we have are pediatric Mickey Mouse ones and they were a little small for Troy. He started feeling better Saturday and we are hoping and praying our little girls don't get sick. We had Thanksgiving lunch today with the Phillips side and it was a great day. Rylee walked up to all the kids and waved Hi to all of them. It was really really cute and I can't wait to see her be able to play with other kids once cold and flu season is over with. Jordan is still pretty shy out in public but seems to be warming up more and more. We were scheduled for Rylee's synagis vaccination on Wednesday and minutes before walking out the door I called to make sure they had received it in our doctor's office and we were informed that it was not even shipped out yet. Needless to say I was not a very happy mommy. They got the paperwork straightened out and Rylee was able to get this vaccination on Friday. It was not too fun seeing her get these shots and the nurse hated it even more. The nurse and doctor were both very amazed at how far Rylee has come in just a short time. The doctor was not real comfortable with us taking Rylee to a huge family gathering but I just couldn't bear to keep her home. It is so nice just being able to leave our house without all the medical equipment in tow.

Fall 2010 Pictures

Here are some of the pictures we had taken a few weeks ago in Shawnee Mission Park. We have had a great week at home with the girls. I am taking Rylee to CMH tomorrow to meet with OT so they can see how she is doing on her feedings and they will weigh her and if she has gained weight we might get a few weeks off from having to go to CMH. Rylee is scheduled for her synagis vaccination on Wednesday and I am not looking forward to taking her to the doctor for this. I almost backed out of taking her as I don't want to put her through these shots but Troy quickly reminded me how important it is that she get any help she can. We will hopefully enjoy the holidays with friends and family a little more knowing that she has a better chance to fight off RSV with these vaccinations. She will have to go to the doctor every 28 to 30 days until this Spring. She is already starting to throw a fit when we walk into doctors offices so I am sure this won't help her any. Jordan is still just Jordan. We had a back step with her bottles and were giving her one to two bottles a day depending on how much milk she drank each day. She is on day two of no bottle and she had a major temper tantrum on the kitchen floor right before bed. It really broke my heart seeing her so mad. She will still only drink about 4 to 6 oz a day of milk so hopefully she will start drinking more soon or we may have to see what the doctor has to say.