Sunday, July 31, 2011
Saturday, July 23, 2011
We took the girls in for their 2 1/2 year check up on Friday and talked the doctor into removing Rylee's G tube! We haven't used it for a few months and she seems to be doing fine without thickening her liquids so we felt it was time to get it out. It is going to be so nice to not have to worry about her pulling it out on accident. The site looks pretty bad and will probably require surgery to close the hole. It is still leaking quite a bit so we are just keeping it covered. Jordan seems very concerned over Rylee not having her "button" anymore. Jordan was even kissing Rylee's "owie" tonight. Rylee has been gaining weight really good and weighed in at 26 1/2 pounds and was 34 inches long. Jordan has only gained two pounds during this past year and weighed in at 24 1/2 pounds and was 33 inches long. We talked to the doctor about his thoughts of getting the girls into a preschool program and he thought their immune systems will be able to handle it. He was surprised that we haven't been in for very many sick visits since bringing the girls home. After we left the appointment we went to the preschool office and put a deposit down to hold two spots for this next semester. They will start going on 9/1/11 and will go two mornings a week for three hours. I am so excited for them! I am just hoping we don't have any preschool drop outs. We will still have our nanny come on those days as she will have to take them and pick them up from school. We took the girls to the Great Wolf Lodge on Tuesday night and had a great time. Jordan was not too excited about spending the night and eventually fell asleep right beside me and didn't leave my side all night. Rylee slept in the same bed as Troy and fell out of bed during the night and didn't even cry. They were both up bright and early and we went swimming for a little bit and then went out to lunch and then went to Cabelas and they loved all the animals. We are having a relaxing weekend at home this weekend. Troy played in a softball tournament today in the 104 degree heat and I stayed home with the girls. I am going to go volunteer in the NICU tomorrow so I am excited about that.
Thursday, July 14, 2011
Sunday, July 10, 2011
Nothing too exciting going on with us this week. We took the girls to KC on Friday to get their pictures taken at Nelson Art Gallery and Rylee put on quite the show for the photographer. She didn't have to work at all with her and Rylee just kept posing like she knew what she was doing. Jordan on the other hand did not do so well. I think the noise from the cars driving by about sent her over the edge. It took us 30 minutes just to get her pried off of us and not crying. I am sure she will have a couple good pictures but nothing like miss Rylee. We then went to Crown Center and played at the Crayola Store and then met some friends for lunch at Fritz's. It is a restaurant that has trains going around and they drop the food off at your table. It was pretty loud in the restaurant and the girls were actually scared of the trains. I thought it sounded like a good idea! lol We went to my cousin David's wedding on Saturday and I think we seen like two minutes of the ceremony until we took the girls out of the ceremony. They were all over the place! I was exhausted after chasing them down for a few hours. We have Tiny K coming on Tuesday and I am excited to see what they have to say.
Sunday, July 3, 2011
Rylee has now been trach free for one year and we couldn't be any happier than what we are. Living life without the trach is so much better. We actually get sleep now and most importantly Rylee can breathe! She still amazes us with how well she is doing verbally considering she has only been able to make any type of sound for one year. She repeats everything we say so we really have to watch what we are saying around her. lol We took the girls out on lake Clinton on Thursday night for a few hours and had a great time. Jordan didn't know quite what to think about it and Rylee absolutely loved it and even drove the boat. We are going to Lebo tonight to celebrate the 4th of July and not so sure we will stay and watch the fireworks. I have a feeling the Jordan will not enjoy the noise at all. She is still very sensitive when it comes to loud noises. She even demands to go inside the house if a loud vehicle drives by. We will see the doctor again in July and see if he thinks we should get her in for another hearing test. I hope everyone has a wonderful 4th of July!