Saturday, October 31, 2009

Happy Halloween

Two peas in a pod
A very sweet hooter girl!












Rylee already posing for the camera!
A chunky hooter girl!



Thanks for the Mickey Mouse's DeVoe family!

Already reading. Maybe upside down.
The girls are really starting to interact with Maddie.


We have had a great day dressing the girls in their Halloween costumes and taking lots of pictures. We will be staying in this year and hopefully we can take them out to show them off next year. I hope you enjoy the pictures. I picked out the two peas in a pod outfits and daddy made the inappropriate outfits. When I was pregnant with the girls I thought of the two peas in a pod and thought we could take them to a local pumpkin patch for pictures. Since we are unable to take the girls anywhere I thought we would have our fun at home. Jordan was pretty tired during the photo shoot and we didn't get as many good ones of her. She is wore out and sound asleep now. We had a great week with the girls. Tiny K was here on Monday and they were very impressed with both girls. She was glad to see Rylee sitting up so well and loved seeing her attempting to roll over. Rylee mastered rolling over on Thursday night so we were happy about that. Tiny K is going to bring the speech therapist with her in a couple weeks to see what she knows about the passy muir valve that Rylee is wearing. She is doing great with it and is up to 45 minutes 3 times a day. I am a little bit worried because we can hear every breath when she has it on and it reminds me of her stridor that she had prior to the trach. I e-mailed her ENT doctor a video of her to see what her thoughts are on it. Jordan will get her 2nd seasonal flu vaccine on Tuesday and hopefully I can get Rylee in someplace for her 1st H1N1 vaccine this week. We are still waiting on their synagis (RSV) vaccines to get to our house. This has me a little stressed as I called the pharmacy that is handling the vaccines and they have no record of the girls being eligible for the shots. I did verify with our insurance company that both girls are approved and we just need more paperwork sent out. These shots are really expensive and so it is a long process to get it going.


Jordan is cracking herself up over daddy and Maddie playing.
video

Sunday, October 25, 2009

10 month bear pics

Best Friends





Daddy's little Raider fans

Yes, she is licking the bulldog!
The girls gearing up for Halloween.
Sleeping picture #1


Sleeping picture #2
10 month bear pictures


The girls have anew friend and her name is Sophie



Sleeping picture #3

Wednesday, October 21, 2009

Rylee's voice

Enjoy hearing music to our ears!! Poor Rylee fell and we had to quit the filming.




video

Can you say GIDDY!

We got up bright and early this morning and took both girls to CMH for their ENT appointments. Nothing but good news was given to us today. The doctor was shocked to see how big Rylee has gotten, as she hasn't seen her in three months. Of coarse, Ry was nothing but smiles. She looked down her airway with a scope and didn't see anything too concerning and decided to try Rylee on a passy muir valve. It is an attachment that goes on her trach. She has to breath through her trach and then out through her mouth or nose. Rylee handled it like a champ! This allows her to push air up through her vocal cords so we can hear her voice when she has it on. The girl had alot to tell us and didn't shut up the entire time she had it on. I think she may have had some words with the doctor too, as this is the doctor that put her trach in her. She was hooked up to a monitor and her stats were great the entire time. She lasted about 10 minutes before she got tired. The doctor and nurses were very shocked that she was doing so well. Most babies don't do so well and can't tolerate it as well as Rylee did. Ry's nurse informed me that she couldn't tell who had the biggest smile, me, the doctor or Rylee. Rylee loved every minute of it and Jordan just looked at her like something was wrong. We will continue to put this on her several times a day and hope that she can work herself up to having it on at all times besides when she is sleeping. We will schedule a bronch in March or April and then we will go from there. When Ry is able to tolerate the valve all day we can start capping her trach and this is where she will be doing all the breathing through her nose and mouth. I am so proud of this little angel : ) On to baby #2, Jordan. The doctor took a look at her ears and didn't see too much fluid. She was expecting her ear drums to be in worse shape than they were. The doctor sent us across the hall to get some more hearing test and Jordan passed in both ears. She is right on the border line and didn't pass the high or low sounds, but still passed. We will go back in January for another hearing test. The doctor was expecting her to have tubes put in within the month, but after hearing the results of the hearing test we decided to hold off for awhile. We then went up to the special care clinic so Ry could get her 2nd seasonal flu shot. It was so busy in the clinic that she got her shot in the hallway. Once we came home I took Jordan to Lawrence to get her and I the H1N1 vaccines and had to wait in the rain for an hour and then we waited inside for another hour. Ry couldn't get a H1N1 vaccine today because she had to get her 2nd seasonal flu shot today. Just wanted to write an update with our good news. I will be posting videos soon. We want daddy to hear Rylee first and he won't be home until 8:00 as he has teacher conferences.

Sunday, October 18, 2009

The girls supporting their daddy's longhorns.
I found you Jordan!
Rylee already picking her nose.
Daddy and his girls.

Jordan and her biter biscuit.

Rylee looking like a doll.
Rylee enjoying her biter biscuit.



Maddie not listening to what Jordan has to say.
Okay I might have already given the girls one of their Christmas presents!
They love early Christmas presents.
Chicken n biscuit for Rylee
This toy is made for two!