Sunday, September 27, 2009

9 Month bear pictures

Jordan and her monkeys





Rylee with some wild hair and the I didn't do it look.
Best Friends





Jordan's arm stuck again.
Peace
Almost Jordan!


My sleepy Rylee.

Not a whole lot going on with the Webb family this weekend. We just enjoyed our weekend at home and had a nice visit with my sisters and nephews. We did have to contact our nursing agency on Friday to tell them not to send back one of the new nurses. She smelled Rylee's room up with her smoke stench and she couldn't stay awake. We didn't feel too comfortable with her so we would rather not have any coverage than to have her in our home. We didn't get much sleep while she was here anyways. Hopefully they can find us a new weekend nurse soon. We are losing some of our nursing hours so we won't have coverage on Saturday nights anyways. The girls are doing great. Rylee is sitting up very good and Jordan is just about ready to start crawling. The video below of Jordan is her crying every time her daddy would start singing. It was pretty funny to us, but not to her. Tiny K will be here this week to see the girl's progress with their feeding. They still are not eating a whole lot by mouth, but getting better at it everyday.
video

Sunday, September 20, 2009

9 Months


We can't keep track of this girl!


Stuck again
Rylee is truly her daddy's mini me. She has his birthmark at the
bottom of her hair line.
Rylee supporting the wildcats and even has on some texas longhorn
shoes.





Happy 40th Birthday Daddy!

We can't keep her out of here!


I had to put a picture of Rylee sleeping with her lamb.
Rylee is #1

Rylee saying I didn't do it Mommy!
y Jordan loves paper!

Can you believe this? The girls are now 9 months old as of today. We celebrated another big milestone in our house this week too. Daddy is now the BIG 40! We have had a very busy week in our house. Tiny K was here on Wednesday and they were really glad to see the progress the girls have made. Jordan had to show off her sitting skills and Rylee had to show that she is at least trying to roll over now. Jordan is now rocking on her knees and just thinking about crawling. She has been all over the place rolling and scooting and she sure is keeping us on our toes. Rylee is even opening her mouth for her cereal and baby food so Tiny K was glad to see that. We are still working on the sippy cup and bottle and all she wants to do is chew on it. They have us trying a straw and just putting drips in her mouth and maybe she will start sucking after she gets the hang of it. We started Thursday off at the pediatrician office and we were there almost an hour and a half. Rylee hit the scales at 14 pounds 7 ounces and is in the 41% compared to other 25 week preemies. Jordan weighed in at 15 pounds 3 ounces and is in the 55 % compared to other 25 week preemies. The doctor walked in and was amazed with the girls by just looking at them. He hasn't seen them in a month and was really impressed with the progress they are making. He thinks Rylee is a totally different baby then the one we took into see him in May. I guess I didn't think she looked that bad then, but he said she looks very well for what all she has been through. We are trying to get Rylee's nursing company to come give them their synagis (RSV) shots each month so we don't have to take them into the doctor's office each month. If this is the case we don't have to go see the pediatrician for another three months. We have alot of work to do in the next few days to see if we can get this done. I think the doctor could see the fear in my eyes about coming into the doctor's office on a regular basis. The girls received their hepatitis shots and Rylee was able to get a flu shot. Unfortunately Jordan wasn't able to get the flu shot as we have to take her to the main pediatrician office for this. We also have to take the girls to get some routine blood within the next few weeks. We finished the day by making a trip to Saint Lukes Children Spot for their 9 month developmental screenings. They told us Rylee passed with flying colors and so before they even worked with Jordan we knew they were both right on track developmentally. They still are not seeing any signs of Cerebral Palsy and no early sings of autism as well. I walked away from this appointment feeling very good about our miracles. We don't have to go back for 7 months for their adjusted one year screening unless we feel like they need to be seen. We are getting the same services through Tiny K (infant and toddlers) so no real need to see them again. Little Rylee is really starting to make some sounds around her trach and it is pretty cute. She thinks she is hot stuff when she starts to squeak. The video below of Rylee shows her making some sounds. She can do it a little better at times, but this is the only video I have of her for now. It does kind of scare me sometimes because I panic and think her trach fell out. video video

Sunday, September 13, 2009

Sunday update


I am this big!

Am I sweet or what?

Jordan asleep in the jumper again. This is how we get her to sleep. JK

Jordan watching Mickey Mouse. She sat up all by herself.
I guess she is too big for the glider now.

Jordan was trying to get to Maddie.
They are so big now.

Rylee and her lamb.
Jordan getting comfy in the swing.


We took the girls to the BHS football game on Friday night for an hour or so and had a great time. It felt so good to be able to take them out of the house besides going to a doctor's appointment. This is only the second time we have had them both out. Rylee wore her HME (artificial nose) and did pretty good as far as I good tell. They both loved just sitting in their jogging stroller and taking it all in. Don't worry we stood away from the crowd and had the hand sanitizer in their laps. We will probably start taking them for evening walks now that Rylee can wear her HME without too much trouble. It was a very relaxing week for the girls. The only thing we had going was Rylee's caseworker through her nursing program was here on Friday for our monthly visit. We have pediatrician appointments and their nine month developmental screenings on Thursday. I am anxious to see how much they have gained recently. Everyone that sees the girls thinks that Rylee is looking bigger than Jordan. We finally decided we didn't need to have Jordan on her apnea monitor at night anymore. She was having several alarms and it was hard to see if it was real or not. We do have her laying on an angel monitor which alarms if their is no movement within a few seconds. It is nice not having to put this monitor on her at night and having to worry if she is getting tangled up in the cords or not. I finally got to put a zipper sleeper on her and it is much easier than her button up sleepers. She still had the monitor on more for our sanity than for health concerns. She is still sleeping on her belly which is a huge risk for SIDS. We can't really control it now that she rolls around so much.