Sunday, August 22, 2010
20 Months/16 Adjusted
The girls are 20 months old as of the 20th of this month. They are continuing to thrive more and more everyday. Rylee has been eating very well lately. We give her water and 8 oz of pediasure thru her tube and everything else she is taking by mouth. She usually drinks about 4 to 6 ounces of her thickened pediasure and some juice throughout the day. I am weighing her on a regular basis to make sure she doesn't lose too much weight. We will be done with our night nursing as of 8/30 and we are looking forward to not needing nursing services. Troy and I were able to go on another date this weekend as our nurse was needing to make up some hours. We really miss our day nurse and we are not looking forward to saying bye to our two night nurses. They really don't do much with Rylee now that she doesn't have her trach. She still gets prevacid at 5:30 a.m. and other than that they just monitor her sats and make sure she is comfortable sleeping. It is a lot different than when we first came home. She had feedings and meds every 3 hours. She still wakes up several times at night but she puts herself back to sleep. She is really starting to vocalize and repeats several words a day. I am going to have to break out the "ear muffs" soon as she did repeat a word she shouldn't! She is still pretty quiet and her voice doesn't seem to be getting any louder. I am not too worried but just something we will have to keep an eye on. Our little Jordan has a mind of her own these days. She has been throwing some fits and gets very upset if she doesn't get her way. We pretty much just ignore her and try to focus her attention on something else. We are still working on getting her to take her milk from a sippy cup. I haven't talked Troy into just getting rid of them. He assures me that she will not go to high school still drinking from a bottle.