Sunday, January 17, 2010



Jordan trying her big girl car seat.

Rylee standing!

Jordan hugging daddy after his basketball game. She cried

when she seen him. I think she was very confused when he came out

of the locker room.

This basketball game is boring.

We had a busy week with appointments and lack of sleep this weekend. Rylee had her scheduled appointment at CMH with the special care clinic on Wednesday and everything is going great with her growth and development. She weighed 17 lb 14 oz and was 27 inches long at this appointment. We talked with the nutritionist and we are able to decrease her formula intake by her g-tube as she is eating table food so well. The doctor asked where Jordan was with her speech and when I told her she will say a couple words and a few sounds she was surprised it wasn't more. She asked if her airway had been scoped since her release from the NICU and she was surprised it hasn't as she was on the ventilator for so long. The doctor hasn't ever met Jordan, but is wanting to be able to compare Rylee to her as much as we can. Not much really happened with this appointment and they want to see us again in two months. The doctor was disappointed with Rylee's recent bronchoscopy and is hopeful that she will not require surgery to get her trach removed. Our nanny and I took the girls in for their one year check up on Friday. Jordan weighed 18 lb 1 oz and was 26 1/2 inches. On the 25 week adjusted scale Jordan is in the 35% for weight, 16% for height, and 12% for head circumference. On the full term scale she is in the 5% for weight, and in the 1% for both height and head circumference. If I had seen these stats during the appointment I would have asked the doctor more about her head circumference. She went from 33% on 9/17 to the 12% on 1/15. Just a little concerning to me. Rylee weighed 17 lb 10 oz and was 27 1/2 inches long at this appointment. On the 25 week adjusted scale Rylee is in the 28 % for weight, 48% for height, and 80% for head circumference. I asked the doctor if it was possible that she could grow 1/2 inch in two days and he said it was possible. I don't think this height was accurate. On the full term scale Rylee was in the 3% for weight, 5% for height, and 44 % for head circumference. I have one big head daughter and one small head daughter. The girls each had to get four vaccines each and that was no fun for anyone. They don't have to go back to the pediatrician for three months so that is nice. Rylee is going to have to have another swallow study done as I noticed some of her carrots in her secretions the other day. The doctor thinks that she probably just didn't swallow good enough and it went down her airway. I was afraid they were going to tell me to stop feeding her until we could get her in for a swallow test. She is still just taking a few drinks of yogurt juice when she is eating. We are making progress with liquids so that is exciting to me. We have another busy week with doctor appointments and Rylee is having another bronchoscopy surgery on Thursday. Jordan has a follow up hearing test on Tuesday and Rylee has to meet with Anesthesia that same day. We are praying that Thursday goes smoothly and the doctor is able to do some more dilating of her airway to get her airway to open up. I am also praying that Rylee handles the procedure better than last time and she recovers from the anesthesia better. We are still working on a sleep with Jordan and she has her good nights and bad nights. We have had a couple bad nights and looking forward to some sleep this week. She will now go to sleep at night without having to be cuddled, but just wakes up a few times and wants held. This is all Troy and I as we have cuddled her to sleep since she has been home. Poor girl doesn't know any different. Keep my baby girl in your thoughts on Thursday and I will post an update when I get a chance on Thursday night. I will post pictures when I get more time later today.

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