As the day nurse left our house today, I closed my eyes and thanked God for bringing me these two little girls. Being alone with the girls is when I can actually look back and see that it's been a struggle worth fighting for. I am struggling to find the "new normal" in our life. Having nurses in our home is not normal to us yet. I think it will get much better when we can find nurses that we actually trust and are comfortable having in our home. I really wish we could do this all on our own, but we just can't do it right now. When Rylee gets off oxygen our life will be much easier. It is really hard not being able to go to family gatherings and just go out with our girls. I am so looking forward to the day that we can just be a normal family. A new nurse came by today to meet us and is planning on working Monday and Thursday nights from 11pm to 7am. I didn't get a great first impression, but I am hopeful she will work out for us.